Terri

Terri and Mark, 1985

Many of the posts in this blog have featured stories of my growing up. Although my mother and father figure prominently in these stories, my sister is barely ever mentioned. Today, on the fifth anniversary of her death from pancreatic cancer, I’ll take the opportunity to remember her with these words that I spoke at her memorial service.

We were once a family. There were four of us — the Schaeffers. We lived in a cozy house on Yoakum Avenue, in Farmingdale, Long Island. There were Fran and Aaron, our parents; there was me, the first-born son; and then there was Terri. She was two and a half years younger than me, but I don’t remember a time when she wasn’t with us.

From the beginning, Terri was a ray of sunshine. I’m told that I was a difficult baby, given to moodiness and crying and projectile vomiting, but Terri was good-natured, bright-eyed, and quiet — so placid that for a time, Mom thought there might be something wrong with her. There was nothing wrong with her. She was smart; she did well in school; she had friends. We all saw her as the normal one in the family. We knew she was going to be just fine.

But the problem with being “the normal one” is that she so often didn’t get the attention she deserved. I was the creative child, the one who brought home the awards — but I was also the difficult and rebellious one, who was sent to a psychotherapist when I was 8. At one point, both of our parents and I were all in therapy. Terri wasn’t, because everyone just assumed that she was OK. When it came time to go to college, I was sent off to an Ivy League school; Terri was told that she’d need to go to a state school, because our parents couldn’t afford to buy us both a private education — and she was considered more likely to turn out OK no matter where she went.

How did she feel about all this? I don’t know; she never talked about it. She was always there when I needed her, particularly at weddings and bar mitzvahs, where I’d keep her by my side so I could ask her, “Who is that guy? Am I supposed to know him? What is his wife’s name?” But there were certain topics of conversation that were just off-limits. She never wanted to expose her inner self, to reveal the hurt she clearly carried inside.

We lived on opposite coasts for most of our adult lives, seeing each other only every year or two. Most of our contact was through our mother, who would tell each of us what the other was doing, and how she felt about it. It probably could have gone on like that for years to come, except for three things that intervened.

First, sometime after our father’s death, Terri underwent major surgery, and I never thought to call her. She just wasn’t on my radar. When we eventually spoke on the phone, a couple of weeks later, she finally let out the anger and hurt she’d been feeling all those years. She let me know how often and how deeply I had let her down. I was devastated and ashamed, and I vowed to make it up to her.

Second, she married Ed — wonderful Ed, who made her feel like she was cared for in a way that I don’t think she’d ever felt before. She seemed to become more relaxed and less guarded. Ed and my wife Debra hit it off immediately, and they became the glue that held Terri and me together. On those infrequent occasions when we were able to gather as a foursome, we were able to share love and laughter in a way that Terri and I had never been able to do alone.

And third, just a little more than three years ago, we lost our mother to pancreatic cancer — the same disease that just took Terri from us. Without our mom to connect us, we realized that if we were going to have any sort of relationship, it was up to us to maintain it. And we both made it a point to do that, all the way through the time of her cancer diagnosis and treatment and final illness. I’m so grateful that at the end, we really felt that bond of being brother and sister. It was such a recent thing, and I miss it. I miss her. I miss the Schaeffer family, of which I’m now the only member. And I’m so proud of the number of people who have come here today to express their love for Terri, who grew to be so much more than just “the normal one,” and who so sweetly touched all of our lives.

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Yay Us!

“Can you believe it’s been 35 years, and we still enjoy each other’s company?!” Debra has been wont to comment lately.

“Less so each time you say that” is my mock-irritated reply. But I have to admit that it is pretty remarkable, especially since the last of those years culminated in a ten-day confinement in a small London apartment while we slowly recovered from COVID.

Thirty-five years ago today, Debra and I stood in a rustic Quaker meeting house in New Jersey and recited vows to each other. There is no clergy at a Quaker wedding; it is the collective declaration of the people who are present — represented by their signatures on a large certificate — that makes the marriage official.

That certificate still hangs on our living room wall. As the years have passed, fewer and fewer of the people who signed it are still around to see what became of the young couple whose vows they affirmed. Not all of the intervening years have been pleasant; there were painful periods that sometimes raised doubts about whether our relationship would survive. But like the caterpillar that turns to gunk inside a chrysalis and then somehow comes forth as a butterfly, our marriage has emerged as something light and lovely.

We do still enjoy each other’s company. We make each other laugh every day, no matter what either of us might be going through. We support each other completely, whether that means giving each other space to do the things we want to do individually, or coming together to do the things (home maintenance, anybody?) that neither of us wants to do alone.

Not many people know that we ran a business together for ten years. Our skills were perfectly complementary — Debra handling the aspects that required social skills, me handling the technical aspects that she had no patience for — and when meeting with clients, we were able to communicate solely by eye contact, since each of us knew exactly what the other was thinking. That business was dissolved long ago (Debra, for some reason, thought it would be preferable to do work that would actually earn us money), but we still have a natural knack for collaboration, whether it involves fostering kittens or opening our living room for monthly house concerts.

Our partnership runs so deep that neither of us knows what we’d do without the other. That has become more than a theoretical question, as our bodies age and our infirmities accumulate. But as much as we rely on each other for practical things, we depend even more on the deep and constant knowledge that there is someone who knows us, cares about us, and loves us more than anyone else on earth. To imagine living without that is impossible.

I’ve always resisted writing blog posts that deal solely with my personal life. Although each post may revolve around some experience I’ve had, I always make sure that there’s some larger point, some more universal insight, that makes it more than just a piece of writing about me.

This post will have to be the exception. I have no conclusion to draw, no advice to offer about why our relationship has lasted as long as it has and how yours can do the same. Our experience is strictly our own, and doesn’t lend itself to generalizations. But Debra, who is so often a supporting character in these posts, deserves for the world to know how much more than a supporting character she is in my life. I am incredibly fortunate. We are incredibly fortunate. May your life be equally blessed.

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A Passing Thought

Grandma Jeanne

Grandma Jeanne, my mother’s mother, was a strong woman. She inherited the title of family matriarch when her own mother died in 1975, and held onto that position for more than 25 years. Well into her late 80s, she was still doing her own grocery shopping and participating weekly in a bowling league. She prided herself on her youthful appearance and manner. (When my family threw her a big 85th birthday party, we were surprised that Joe, the man she was dating at the time, wasn’t there. When we asked why, she said, “I didn’t invite him. He thinks I’m 60!”)

She was one of seven siblings, every one of whom had as strong a personality as Grandma. In the end, only three of them remained — Grandma and her two younger sisters — and none of them was speaking to the others. She and my mother had a difficult relationship as well, but when Grandma, at age 90, decided to abandon treatment for colon cancer and go home to die, it was my mother who cared for her.

At that time, Grandma lived alone in an apartment in Fort Lauderdale. My mom lived with her second husband, Eddy, in a house in Boynton Beach. (It was an unwritten rule in that era that when Jewish New Yorkers retired, they would move to South Florida.) It took an hour each way for my mom to drive to and from Grandma’s place, but she did it just about every day. A Jamaican home health aide — whose name, alas, I don’t remember — stayed with Grandma the rest of the time.

When I heard that Grandma was on her deathbed, I flew from California to Florida to support my mother. By the time I got there, Grandma had lapsed into unconsciousness, so there wasn’t much I could do to support Grandma. When I got my first glimpse of her, she was propped up in a hospital-style bed, bald except for a few wisps of gray hair, with her mouth hanging open as she noisily struggled to breathe. She would not have liked me to see her that way.

The home health aide said, “You can talk to her. She’ll hear what you’re saying.” But as someone who barely knows what to say in ordinary situations, I certainly didn’t know what to say in this one. I put my hands on Grandma and meditated, hoping that I could pass on some healing energy to reduce her pain.

Now, this is the part that I can’t account for: My mother had to go out for some reason, and I really don’t remember why. But she did, leaving me alone with Grandma and the health aide. I sat at Grandma’s side, hoping that she’d hold on awhile longer. Every once in a while, she’d let out a moan, and I’d look helplessly at the health aide. The aide would get up from her chair across the room, feel Grandma’s feet, say, “No, it’s not time yet,” and go back to her reading.

But eventually, the inevitable happened. Grandma made a noise different from the ones before. The health aide got up, looked at her, felt her feet, and said, “OK, now it’s time.” She lifted the blanket and sheet off of Grandma and snapped the sheet in the air, the way one does when one is making a bed. Grandma let out one more sound — sort of a cross between a fearful groan and a wistful sigh — and then, in an instant, became still.

I had never seen anyone die before.

The health aide, having finished her work, packed up and left. Now it was just Grandma and me. The stillness was intense. I stared at Grandma’s body, still in the same position it was in when she let out that final groan. I tried to connect this shell with the Grandma I had cuddled with as a child, whose cooking I had always loved, whose sharp comments had alternately made me laugh and cringe. I left the room to get some air, came back a few minutes later, and found the scene absolutely unchanged, seemingly down to the last molecule. There was something magical about it, as if real life had suddenly transmuted into an exhibit in a wax museum.

Eventually my mother came back. She made some calls. Two men came in, wrapped Grandma in a blanket, strapped her to a board, and awkwardly tried to maneuver her through the small apartment and down the stairs. That magical, frozen stillness vanished, replaced by a vast emptiness. This was no longer Grandma’s apartment. It was just… an apartment.

Death is something we often hear about but rarely see. Other members of my family have died, but I was not at their side at the time. I am grateful that I had that opportunity with Grandma. From that day on, death was no longer something huge, abstract, and fearsome. It was just a physical thing that happens. The home health aide, whose reassuring presence I’ll always remember, knew this. “It’s not time yet…. OK, now it’s time.” It was really just that simple.

As I write this, nearly three million people have died of COVID-19 worldwide. Like Grandma, each one of them left a huge emptiness behind. But because of quarantine requirements, most of them had no family member by their side — someone who could have learned and benefited from witnessing their passing. That makes their deaths feel doubly sad.

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