Terri

Terri and Mark, 1985

Many of the posts in this blog have featured stories of my growing up. Although my mother and father figure prominently in these stories, my sister is barely ever mentioned. Today, on the fifth anniversary of her death from pancreatic cancer, I’ll take the opportunity to remember her with these words that I spoke at her memorial service.

We were once a family. There were four of us — the Schaeffers. We lived in a cozy house on Yoakum Avenue, in Farmingdale, Long Island. There were Fran and Aaron, our parents; there was me, the first-born son; and then there was Terri. She was two and a half years younger than me, but I don’t remember a time when she wasn’t with us.

From the beginning, Terri was a ray of sunshine. I’m told that I was a difficult baby, given to moodiness and crying and projectile vomiting, but Terri was good-natured, bright-eyed, and quiet — so placid that for a time, Mom thought there might be something wrong with her. There was nothing wrong with her. She was smart; she did well in school; she had friends. We all saw her as the normal one in the family. We knew she was going to be just fine.

But the problem with being “the normal one” is that she so often didn’t get the attention she deserved. I was the creative child, the one who brought home the awards — but I was also the difficult and rebellious one, who was sent to a psychotherapist when I was 8. At one point, both of our parents and I were all in therapy. Terri wasn’t, because everyone just assumed that she was OK. When it came time to go to college, I was sent off to an Ivy League school; Terri was told that she’d need to go to a state school, because our parents couldn’t afford to buy us both a private education — and she was considered more likely to turn out OK no matter where she went.

How did she feel about all this? I don’t know; she never talked about it. She was always there when I needed her, particularly at weddings and bar mitzvahs, where I’d keep her by my side so I could ask her, “Who is that guy? Am I supposed to know him? What is his wife’s name?” But there were certain topics of conversation that were just off-limits. She never wanted to expose her inner self, to reveal the hurt she clearly carried inside.

We lived on opposite coasts for most of our adult lives, seeing each other only every year or two. Most of our contact was through our mother, who would tell each of us what the other was doing, and how she felt about it. It probably could have gone on like that for years to come, except for three things that intervened.

First, sometime after our father’s death, Terri underwent major surgery, and I never thought to call her. She just wasn’t on my radar. When we eventually spoke on the phone, a couple of weeks later, she finally let out the anger and hurt she’d been feeling all those years. She let me know how often and how deeply I had let her down. I was devastated and ashamed, and I vowed to make it up to her.

Second, she married Ed — wonderful Ed, who made her feel like she was cared for in a way that I don’t think she’d ever felt before. She seemed to become more relaxed and less guarded. Ed and my wife Debra hit it off immediately, and they became the glue that held Terri and me together. On those infrequent occasions when we were able to gather as a foursome, we were able to share love and laughter in a way that Terri and I had never been able to do alone.

And third, just a little more than three years ago, we lost our mother to pancreatic cancer — the same disease that just took Terri from us. Without our mom to connect us, we realized that if we were going to have any sort of relationship, it was up to us to maintain it. And we both made it a point to do that, all the way through the time of her cancer diagnosis and treatment and final illness. I’m so grateful that at the end, we really felt that bond of being brother and sister. It was such a recent thing, and I miss it. I miss her. I miss the Schaeffer family, of which I’m now the only member. And I’m so proud of the number of people who have come here today to express their love for Terri, who grew to be so much more than just “the normal one,” and who so sweetly touched all of our lives.

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Dead to Rights

When my mother was told, eight years ago, that nothing more could be done to treat her pancreatic cancer, she was undaunted. She was not about to let something as important as her death escape her control. She somehow managed to enter hospice over Labor Day weekend, making it as convenient as possible for all of the out-of-town relatives to fly to her Florida hospital room. She told us exactly who should cater her shiva, and instructed us to order food for 75 people. (Taking into account my mother’s popularity, we instead ordered food for 100 people, and ended up with precisely 25 people’s worth of food left over.)

Most important, she had long since arranged and paid for her funeral and burial. (She was proud of having nabbed “waterfront property” for her gravesite, which was her half-serious way to describe its location next to one of the cemetery’s small ponds.) All we, her offspring, had to do was go to the funeral home and sign some papers.

There was one small omission in her planning. “Did she belong to a synagogue?” the funeral director asked us. The answer was no — her second husband, Eddy, had never been a fan of attending services. “Well, we’ll need to get a rabbi to officiate at the funeral,” the director said. “What kind of rabbi do you want?”

I was not prepared for that question. It hadn’t occurred to me that rabbis came in kinds. For lack of a more sophisticated response, I said, “A rabbi with a sense of humor?” That turned out to be the perfect answer. “Ah, I have just the right person for you,” the funeral director said, and the rabbi we were matched with did turn out to be an ideal choice.

What strikes me now is how the funeral director phrased the question. She did not ask — as she well might have — “What kind of rabbi would your mother have wanted?” Clearly, the rabbi’s primary function was to make us, the mourners, feel comforted. My mother’s preferences, whatever they might have been, did not need to be taken into account. She was, after all, dead.

The reason I need to state this so bluntly is that people’s condition of being deceased rarely seems to get in the way of their wishes being carried out. I’m puzzled by the deference that’s given to the feelings of someone who is no longer equipped to have any.

I’m happy that my mother planned her funeral in advance — not because that allowed her to have the funeral she wanted, but because doing so took the burden of arranging it off her survivors. I’m grateful that she made a will — not because it means that her property was distributed in a way she would approve of, but because it relieved her survivors of having to squabble over who was entitled to what. For some reason, actions that I consider altruistic — done as a favor to the next generation — are routinely treated as if their sole purpose is to benefit the deceased. This makes no sense to me, because short of resurrection, nothing can be done to benefit the deceased.

These thoughts come to mind because of an article that I recently read in The Guardian, about the man who pretty much invented the idea of dead celebrities’ likenesses being owned by their estates. It had previously been established that celebrities were legally entitled to “publicity rights” — the right to decide who got to make use of their names and faces, and for what purposes. This made perfect sense, since living celebrities might object to being portrayed as endorsing a cause, or a product, that they didn’t in fact support. Secondarily, it gave those celebrities the sole right to profit — or to license others to profit — from their hard-won fame.

In the early 1980s, a lawyer named Roger Richman promoted the idea that since publicity rights constituted a financial asset, they could be inherited after a celebrity’s death, just like any other asset. He became well known for his aggressive representation of the estate of Albert Einstein, immediately suing anyone who put Einstein’s face on a T-shirt or otherwise used his image for a purpose not authorized by Einstein’s estate. His litigiousness is estimated to have earned $250 million for the Hebrew University, which currently owns Einstein’s publicity rights.

But publicly, this financial arrangement is portrayed as being for Einstein’s benefit — protecting his image from being sullied by association with ideas or organizations that he would not have approved of in life. For example, Einstein’s persona may not be used to promote tobacco, alcohol, or gambling (which is interesting, since he is well known for his habitual pipe-smoking).

It’s quite possible that Einstein’s heirs do feel a moral duty to maintain the purity of his reputation, apart from whatever financial gain that continued purity brings them. They’re certainly entitled to hold that belief, if it brings them comfort. But we need to dispense with the fiction that this protection is somehow owed to Einstein himself, because it’s “what he would have wanted.” Einstein died 67 years ago, and any wants he might have had died along with him. There are a number of things that dead people cannot do, and holding opinions is one of them.

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Death-Defying

A few years ago, I died in a dream.

Back when I was growing up, that was considered to be impossible. The common wisdom was that if you died in a dream, you’d never wake up — dream death equaled real death. (It never occurred to me at the time that there was no way to verify that claim empirically.) Sure enough, for most of my life, I could dream of almost dying, but never of actually crossing the threshold.

In real life, I’ve had several experiences of narrowly avoiding death, and so have many people I’ve talked to. Given how common that experience seems to be, it’s amazing how many of us are still alive.

My most vivid memory of not dying comes from a family trip to Washington, DC when I was eleven years old. It was my first experience of traveling far from home, and I was in a constant state of excitement. (This was back before the federal government had taken on its unshakeable aura of sleaze, when seeing the Washington Monument and the Lincoln Memorial for the first time could be genuinely awe-inspiring.) As we strolled past several blocks of gleaming government buildings, I could barely contain my energy. There was a series of low, white retaining walls that separated the buildings’ sloping lawns from the sidewalk, and I jumped onto each one and strode along it balance-beam style, with my arms out to the sides.

At one point I came to a wall that was just like the others, except that it had a squat metal railing down the middle. I jumped up on it and tried to keep up the pace, but the railing made it difficult to get my footing. As I glanced briefly to my right, I discovered why this wall was different from the others: We were on a highway overpass, with six lanes of traffic racing below, and I was balancing on its very edge.

I gasped and immediately jumped to my left, down onto the sidewalk. My parents, still walking, had no idea that anything had happened. But that glimpse of the highway below me — still burned into my memory today — remained horrifying. I realized how close I had just come to catastrophe.

I didn’t find out on that day what it felt like to die, and assumed that I would never find out until the moment actually came. But then, not too long ago, I had this dream.

In my dream, rather than balancing on the edge of an overpass, I was lying in bed, dozing. There were other people in the room, quietly moving about. Suddenly everything froze — time itself seemed to stop. Although no omniscient voice told me so, I immediately understood that my life was about to end. I’d been granted this pause so that I could adjust to the idea and prepare myself. The pause would last for as long as I needed it to.

When I felt that I was ready, I shifted in the bed. That motion was enough to end the pause and start time flowing again. Surprisingly quickly, I (my consciousness?) left my body and started hurtling away. I started to cry out, but the voice wasn’t coming from “me”; it was coming from my body, which was rapidly vanishing into the distance. I was simultaneously frightened and exhilarated, watching the world I’d known shrink down to a pinpoint and then disappear.

I wish I could say that this is where the dream ended. In the absence of any actual experience, if I ever ask myself what dying is like, this scenario seems as real and believable as any. The preparatory pause certainly seems like something that a benevolent universe would bestow.

Unfortunately, the dream concluded on an unexpectedly sour note. There “I” was, disembodied, surrounded by blackness, alone in an empty universe. I immediately knew that this couldn’t be real. If I were truly dead, there would be no “me” left to have this experience — either my consciousness would come to an end, or it would merge into the rest of existence and become part of a whole. Clearly, this couldn’t really be death; someone must be playing a trick on me.

Faced with this disappointing realization, I did the logical thing: I woke up. I still like to say that I died in this dream, thus refuting my childhood belief that one can’t; but it will be quite some time (let us hope) before I know for sure.

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A Passing Thought

Grandma Jeanne

Grandma Jeanne, my mother’s mother, was a strong woman. She inherited the title of family matriarch when her own mother died in 1975, and held onto that position for more than 25 years. Well into her late 80s, she was still doing her own grocery shopping and participating weekly in a bowling league. She prided herself on her youthful appearance and manner. (When my family threw her a big 85th birthday party, we were surprised that Joe, the man she was dating at the time, wasn’t there. When we asked why, she said, “I didn’t invite him. He thinks I’m 60!”)

She was one of seven siblings, every one of whom had as strong a personality as Grandma. In the end, only three of them remained — Grandma and her two younger sisters — and none of them was speaking to the others. She and my mother had a difficult relationship as well, but when Grandma, at age 90, decided to abandon treatment for colon cancer and go home to die, it was my mother who cared for her.

At that time, Grandma lived alone in an apartment in Fort Lauderdale. My mom lived with her second husband, Eddy, in a house in Boynton Beach. (It was an unwritten rule in that era that when Jewish New Yorkers retired, they would move to South Florida.) It took an hour each way for my mom to drive to and from Grandma’s place, but she did it just about every day. A Jamaican home health aide — whose name, alas, I don’t remember — stayed with Grandma the rest of the time.

When I heard that Grandma was on her deathbed, I flew from California to Florida to support my mother. By the time I got there, Grandma had lapsed into unconsciousness, so there wasn’t much I could do to support Grandma. When I got my first glimpse of her, she was propped up in a hospital-style bed, bald except for a few wisps of gray hair, with her mouth hanging open as she noisily struggled to breathe. She would not have liked me to see her that way.

The home health aide said, “You can talk to her. She’ll hear what you’re saying.” But as someone who barely knows what to say in ordinary situations, I certainly didn’t know what to say in this one. I put my hands on Grandma and meditated, hoping that I could pass on some healing energy to reduce her pain.

Now, this is the part that I can’t account for: My mother had to go out for some reason, and I really don’t remember why. But she did, leaving me alone with Grandma and the health aide. I sat at Grandma’s side, hoping that she’d hold on awhile longer. Every once in a while, she’d let out a moan, and I’d look helplessly at the health aide. The aide would get up from her chair across the room, feel Grandma’s feet, say, “No, it’s not time yet,” and go back to her reading.

But eventually, the inevitable happened. Grandma made a noise different from the ones before. The health aide got up, looked at her, felt her feet, and said, “OK, now it’s time.” She lifted the blanket and sheet off of Grandma and snapped the sheet in the air, the way one does when one is making a bed. Grandma let out one more sound — sort of a cross between a fearful groan and a wistful sigh — and then, in an instant, became still.

I had never seen anyone die before.

The health aide, having finished her work, packed up and left. Now it was just Grandma and me. The stillness was intense. I stared at Grandma’s body, still in the same position it was in when she let out that final groan. I tried to connect this shell with the Grandma I had cuddled with as a child, whose cooking I had always loved, whose sharp comments had alternately made me laugh and cringe. I left the room to get some air, came back a few minutes later, and found the scene absolutely unchanged, seemingly down to the last molecule. There was something magical about it, as if real life had suddenly transmuted into an exhibit in a wax museum.

Eventually my mother came back. She made some calls. Two men came in, wrapped Grandma in a blanket, strapped her to a board, and awkwardly tried to maneuver her through the small apartment and down the stairs. That magical, frozen stillness vanished, replaced by a vast emptiness. This was no longer Grandma’s apartment. It was just… an apartment.

Death is something we often hear about but rarely see. Other members of my family have died, but I was not at their side at the time. I am grateful that I had that opportunity with Grandma. From that day on, death was no longer something huge, abstract, and fearsome. It was just a physical thing that happens. The home health aide, whose reassuring presence I’ll always remember, knew this. “It’s not time yet…. OK, now it’s time.” It was really just that simple.

As I write this, nearly three million people have died of COVID-19 worldwide. Like Grandma, each one of them left a huge emptiness behind. But because of quarantine requirements, most of them had no family member by their side — someone who could have learned and benefited from witnessing their passing. That makes their deaths feel doubly sad.

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Boxing Day

It was late summer of 1993, and my father was dying of cancer in a Florida hospital. My sister, my wife, and I had flown in to see him for what we knew would be the last time. We spent the morning gathered around his hospital bed, talking with him about the weather.

In the mid-afternoon, the nurse informed us that he needed to rest. My mother — always a practical woman — took us aside. “We ought to pick out a coffin,” she said.

So it was that we found ourselves in the showroom of a nearby funeral home, surrounded by sample caskets. Though they varied in shape and color, all were exquisitely crafted, lovingly detailed, and polished to a high gleam. “What do you think of this one?” my mother said. She gestured toward a breathtaking work of mahogany, lined with billowing satin.

“It’s beautiful,” I said. “Nicer than any piece of furniture I’ve ever owned.”

“The lining seems thin,” she said.

“I’m sure he’ll be comfortable,” I said, only half hoping she wouldn’t hear me. I glanced at the small, elegant placard that quoted a “before need” price of $28,000. “You’re going to put this in the ground?” I said.

“Well, which one would you choose?” my mother asked.

I pointed to a casket in the corner of the room. It was a plain, unfinished pine box, simple but competently constructed. It was priced — still a bit exorbitantly, I thought — at $500. It seemed eminently suited to its purpose, which would be to hold a body and then to decompose.

“What about that one?” I said.

My mother turned to me, her eyes daggers in wet pools. “Mark,” she said, “this is your father we’re talking about.”

My father, I’m reasonably sure, would have been satisfied with the pine box, which was actually in keeping with Orthodox Jewish tradition. My mother’s attitude was clearly not unusual, however. It seems that many people would rather see their loved ones depart in a Rolls Royce than a Hyundai, even though the destination is the same.

I’m not sure why this is. It can’t just be about appearances — if it were, I’m sure that funeral homes would be falling over themselves to offer coffin rental services, where the deceased is displayed in an antique Chippendale during the funeral and gets swapped into a sturdy cardboard carton before burial.

My guess is that it has more to do with the desire for immortality. People seem to be comforted by the idea that they and their loved ones will live on, in one way or another, after death. Providing the deceased with a congenial environment helps us hold on to the idea that the person we loved is still there, somehow.

My wife likes to say, “You remain alive for as long as people still remember you.” It’s a beautiful sentiment, but even if it’s true, that condition merely postpones mortality; it doesn’t eliminate it. People’s memories of you will not last more than a few generations. The things you touched will decay or be thrown away. The passage of time will wear your granite headstone smooth. More than 100 billion people have lived on this earth; most of them have left no trace.

Personally, I feel no need to believe that any part of me will remain after I’m gone. People will remember me as long as they wish to, and then they won’t; the life I lived will have been the same either way. After discussing it with my wife, who is the one who will be most affected, I decided to donate my body to science, where I hope it will benefit someone. Whether or not my life ultimately has any meaning, I can at least have it end with my being useful.

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